Neuroendocrine Tumor Research Foundation information
Nonprofit organization in Boston, United States
Neuroendocrine Tumor Research Foundation
Abbreviation
NETRF
Formation
2005
Type
Nonprofit corporation
Headquarters
Boston, Massachusetts, United States
Chief Executive Officer
Elyse Gellerman
Key people
John Kanki, Director of Research
Susan Payson, Chief Development Officer
Christine Coffey, Director of Communications
Revenue (2015)
$17,040,511[1]
Expenses (2015)
$1,165,910[1]
Website
www.netrf.org
The Neuroendocrine Tumor Research Foundation (NETRF), previously known as the Caring for Carcinoid Foundation (CFCF), is a nonprofit corporation organized under the laws of Massachusetts in order to support neuroendocrine and carcinoid cancer research in the public interest. The mission of NETRF is to fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers. The specific objectives and purposes of the foundation are to support doctors and scientists who are researching the causes of carcinoid[2] and related neuroendocrine tumors and developing treatments; and to inform the public about research and treatments.[3] According to non-profit information hub Candid, NETRF has spent $36 million supporting research since 2005, as of December 2023. The organization also produces its own educational podcast, Netwise.[4] The foundation is accredited by the Better Business Bureau.[5]
The foundation was founded in 2004 by Nancy Lindholm (formerly Nancy O'Hagan), who was a carcinoid patient.[6][7] It is located in Boston.[8] On November 10, 2010, the foundation celebrated the first annual Worldwide Neuroendocrine Tumor (NET) Cancer Awareness Day by launching their new website, which provides comprehensive information for family and friends.[9] From time to time the foundation makes grants available jointly with the American Association for Cancer Research.[10] On other occasions, the foundation acts in conjunction with other grant providers[11] or as the sole grant provider.[12][13] In 2015, the organization officially changed its name to the Neuroendocrine Tumor Research Foundation and its website to www.netrf.org.
^ ab"Caring for Carcinoid Foundation" (PDF). Foundation Center. November 15, 2016. Retrieved June 30, 2017.
^"Carcinoid syndrome: MedlinePlus Medical Encyclopedia". Nlm.nih.gov. May 16, 2008. Retrieved November 10, 2011.
^"The Caring for Carcinoid Foundation Celebrates Worldwide Neuroendocrine Tumor Cancer Awareness Day with... – BOSTON, Nov. 10, 2010 /PRNewswire-USNewswire/". Massachusetts: Prnewswire.com. Retrieved November 10, 2011.
^"Neuroendocrine Tumor Research Foundation". Candid. Candid. n.d. Retrieved December 28, 2023.
^"Charity Review of Caring for Carcinoid Foundation". Bbb.org. December 31, 2009. Retrieved November 10, 2011.
^"Founder Nancy Lindholm | Caring for Carcinoid Foundation". Caringforcarcinoid.org. Archived from the original on November 14, 2011. Retrieved November 10, 2011.
^[1] Archived October 31, 2010, at the Wayback Machine
^"Frequently Asked Questions | Caring for Carcinoid Foundation". Caringforcarcinoid.org. Archived from the original on November 14, 2011. Retrieved November 10, 2011.
^http://www.centredaily.com/2010/11/10/2331580/the-caring-for-carcinoid-foundation.html[permanent dead link]
^"Caring for Carcinoid Foundation-AACR Grants for Carcinoid Tumor and Pancreatic Neuroendocrine Tumor Research". Archived from the original on September 1, 2010. Retrieved 2010-11-12.
^"Drug combination shows promise for treatment of advanced neuroendocrine tumors". January 19, 2006. Archived from the original on May 16, 2008. Retrieved November 14, 2010.
^"Carcinoid Tumor Research Grant Of $250,000 Received By Researcher At M. D. Anderson Cancer Center". Medicalnewstoday.com. Retrieved November 10, 2011.
^"Tufts-NEMC Physician-Researcher Andrew Leiter, MD, PhD, Is Awarded 250,000 Dollars Carcinoid Tumor Research Grant". Medicalnewstoday.com. Retrieved November 10, 2011.
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