List of rare disease organisations information

This is a list of non-profit organisations working in the area of rare diseases. Care-For-Rare Foundation [de] ICD coding for rare diseases International...

A rare disease is a disease that affects a small percentage of the population. In some parts of the world, the term orphan disease describes a rare disease...

Index". National Institute of Neurological Disorders and Stroke (NINDS) Disease Acronyms and Abbreviations Genetic and Rare Diseases Information Center (GARD)...

criteria laid out by the European Union Committee of Experts on Rare Diseases. List of rare disease organisations "2013 EURORDIS Policy factsheet" (PDF). Eurordis...

reliable sources of genetic diversity. Conservation organisations each have their own definition of what constitutes a rare breed. The Rare Breeds Survival...

Whipple's disease and awareness of other rare diseases, cancers and disorders. The zebra has been used as a symbol for rare diseases since around 1940. Dr. Theodore...

umbrella organisation which promotes research on rare diseases. The patron of the charity is Sean Hepburn-Ferrer, the son of Audrey Hepburn who died of pseudomyxoma...

2018. "Hanahaki Disease". Fanlore. September 21, 2017. Retrieved January 15, 2018. "Harlequin ichthyosis | Genetic and Rare Diseases Information Center...

Special Olympics Singapore Very Special Arts Singapore List of youth organisations in Singapore List of social service agencies in Singapore "CHCSA". City...

Orphanet is an organisation and knowledge base dedicated to rare diseases as well as corresponding diagnosis, orphan drugs, clinical trials and expert...

extinct. It maintains a watch list of rare native breeds of cattle, sheep, pigs, horses, goats and poultry, and an approved list of farm parks. Projects have...

Panama disease (or Fusarium wilt) is a plant disease that infects banana plants (Musa spp.). It is a wilting disease caused by the fungus Fusarium oxysporum...

charities, professional organisations, regulators and support groups. At the end there is a list of historic nursing organisations. This list is based on the...

This list of unusual deaths includes unique or extremely rare circumstances of death recorded throughout history, noted as being unusual by multiple sources...

Nodding disease, also known as nodding syndrome, is a mentally and physically disabling disease that affects children aged 3 and above, continuing into...

This is a list of nature conservation organisations that primarily aim to protect species, their habitats, and ecosystems. African Wild Dog Conservancy...

(2009). "Kummel disease: a not-so-rare complication of osteoporotic vertebral compression fractures". Journal of the American Board of Family Medicine...

Cardiovascular disease (CVD) is any disease involving the heart or blood vessels. CVDs constitute a class of diseases that includes: coronary artery diseases (e.g...

and other health issues. Refer: List of dog breeds The Fédération Cynologique Internationale is a global organisation with 98 members and contract partners...

Neglected tropical diseases (NTDs) are a diverse group of tropical infections that are common in low-income populations in developing regions of Africa, Asia...

An emerging infectious disease (EID) is an infectious disease whose incidence has increased recently (in the past 20 years), and could increase in the...

Besnier–Boeck–Schaumann disease) is a disease involving abnormal collections of inflammatory cells that form lumps known as granulomata. The disease usually begins...

forms of the disease are not being recognized as CMTC. The pathophysiology is still unclear, with most cases occurring sporadically, although rare cases...

Pemphigus vulgaris is a rare chronic blistering skin disease and the most common form of pemphigus. Pemphigus was derived from the Greek word pemphix,...

2012, the European Organisation for Rare Diseases recognised CSL Behring for developing and manufacturing therapies to treat rare and serious medical...

and number of antibiotics used depend on the type of infection. Antitoxin is recommended for those with widespread infection. A rare disease, human anthrax...