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Swiss Personalized Health Network
Keywords
Personalized medicine, personalized health, digital health
Project type
Research infrastructure initiative
Sponsors
State Secretariat for Education, Research and Innovation, Federal Office of Public Health
Objective
To contribute to the development, the implementation, and the validation of a nationally coordinated infrastructure in order to make health-relevant data interoperable and shareable for research in Switzerland.
Location
Switzerland
Project coordinator
Swiss Academy of Medical Sciences, SIB Swiss Institute of Bioinformatics
Participants
Swiss higher education institutions, (university) hospitals, research supports institutions, and patient organizations.
Budget
Total: CHF 68 million (2017-2020)
Duration
2017 –
Website
https://sphn.ch
The Swiss Personalized Health Network initiative (SPHN) was established in 2017 by the government of Switzerland. It is intended to develop personalized medicine and personalized health in Switzerland by harnessing previously segregated health data through establishing a harmonized framework on how to make different data formats interoperable (semantic interoperability) and by building a secure, coordinated IT infrastructure network, across Switzerland.[1]
SPHN integrates health data from many electronic sources in line with Switzerland’s federalism. SPHN rallies all Swiss stakeholders - from key clinical, research-, research support institutions and patient organizations - around the same table[2] and builds upon (and supports) existing resources in Switzerland.
SPHN was commissioned by the Swiss State Secretariat for Education, Research and Innovation and the Federal Office of Public Health.[3] Both the Swiss Academy of Medical Sciences (SAMS) and the SIB Swiss Institute of Bioinformatics (SIB) are responsible for the implementation of the mandate. A total of CHF 68 million was allocated to the initiative for the period 2017-2020.
The ethical, legal and social implications of personalized medicine are central to SPHN. Therefore, the SPHN Ethical, Legal and Societal Implications Advisory Group (ELSIag)[4] was setup and tasked to address key ethical, legal and societal challenges that are relevant to the SPHN’s activities.[5]
^"SPHN - Swiss Personalized Health Network (SPHN): Infrastructure building to enable nationwide use and exchange of health data for research". Retrieved 30 March 2020.
^"An initiative of the Swiss Government". SPHN. Retrieved 30 March 2020.
^SERI, State Secretariat for Education, Research and Innovation. "National Support Initiative 'Personalised Medicine'". www.sbfi.admin.ch. Retrieved 2020-04-06.{{cite web}}: CS1 maint: multiple names: authors list (link)
^"ELSI Advisory Group (ELSIag)". SPHN. Retrieved 30 March 2020.
^"ELSI Projects". SPHN. Retrieved 30 March 2020.
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