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List of people diagnosed with cystic fibrosis information


The following notable people have or had cystic fibrosis.

Name Life Notability Reference
Frankie Abernathy (1981–2007) Former cast member of MTVs The Real World: San Diego; appeared in 22 of the 25 episodes. [1]
Bill Balas (19??—) American screenwriter, director and producer best known for his work on the A&E series Bates Motel and the TNT series Animal Kingdom. [2]
Dean Barnett (1967—2008) American conservative columnist and blogger. [3]
Lisa Bentley (1968—) Canadian Ironman triathlete. [4]
Carré Callaway (1986—) American singer-songwriter, of Queen Kwong [5]
Nathan Charles (1989—) Professional rugby union player with the Western Force. As of 2014, believed to be the only CF patient to play any contact sport professionally. [6]
Frédéric Chopin ? (unconfirmed) (1810–1849) Polish composer. During his lifetime and at his death, he was thought to suffer from tuberculosis. However recently scientists have suggested that his symptoms were more consistent with cystic fibrosis, unknown at the time. The Polish government has refused to allow DNA tests to be performed on his heart, which is preserved in alcohol (see Frédéric Chopin's illness). [7]
Harry Coffey (1995—) Australian professional horse racing jockey. [8]
Christopher Davies (1978—) Former Southern Redbacks cricketer and current Port Adelaide Football Club Football general manager. [9]
AniKa Dąbrowska (2005–) Polish pop singer, winner of the second series of the Polish talent show The Voice Kids [10]
Alexandra Deford (1971–1980) Daughter of American sportswriter Frank Deford, subject of Deford's book Alex: The Life Of A Child. [11]
Gunnar Esiason (1991—) Son of former football player Boomer Esiason. [12]
Bob Flanagan (1952–1996) American writer, poet, performance artist, and comic. [13]
Travis Flores (1991—) American activist, philanthropist, motivational speaker, actor and award-winning children's book author.[14] [15]
Nolan Gottlieb (1982—) Former Anderson University (South Carolina) NCAA basketball player and current Anderson assistant coach. [16]
Queva Griffin (1983—2003) Published a book of poetry as a fundraiser. Named Ireland's Young Person of The Year in 1998. [17]
Kenneth Keith Kallenbach (1970–2008) Frequent guest on the Howard Stern Show. [18]
Grégory Lemarchal (1983—2007) French singer and winner of the show Star Academy, Season 4. [19]
Katie Malik (1979—) American singer and runner up on Swedish reality TV series Allt för Sverige, season 4 (2014). Believed to be the first person with CF to work professionally as an operatic singer. [20]

[21] [22]

Eva Markvoort (1984–2010) Canadian blogger and subject of 65 Redroses. [23]
Alice Martineau (1972–2003) British singer-songwriter and model. [24]
Sarah Murnaghan (2003–) 10-year-old girl who was initially denied access to adult lungs when no pediatric lungs were available. Federal Judge Michael Baylson issued a temporary restraining order keeping Kathleen Sebelius from enforcing the 'patient-must-be-12-or-older' rule. [25]
Christine Nelson (1960–1982) Actress; Daughter of Muppet puppeter Jerry Nelson who appeared alongside her father in a cameo appearance in The Great Muppet Caper. [26][27]
Bianca Nicholas (1989–) British pop and swing singer, one half of Electro Velvet [28]
Laura Rothenberg (1981–2003) Brown University student, and author of Breathing for a Living: A Memoir, and My So Called Lungs a radio documentary, which aired on NPR August 5, 2002. [29]
Andrew Simmons (1984—) British professional wrestler. [30]
Alex Stobbs (1990—) British music student, subject of the documentary A Boy Called Alex [31]
Orla Tinsley (1987—) Irish CF and LGBT activist, author, journalist and student [32]
Bill Williams (1960–1998) Software developer [33]
Anton Yelchin (1989–2016) American actor, best known for his role as Pavel Chekov in the Star Trek reboot. [34]
  1. ^ "'Real World: San Diego' Alum Frankie Abernathy Dead At 25". MTV. June 12, 2007. Retrieved June 12, 2007.
  2. ^ "Sloan Science and Film". Museum of the Moving Image.
  3. ^ "Dean Barnett, conservative blogger, dead at 41". Boston Globe. October 27, 2008. Retrieved October 27, 2008.
  4. ^ "Lisa Bentley Triumphs Over CF". Canadian Cystic Fibrosis Foundation. July 7, 2004. Archived from the original on September 27, 2006. Retrieved January 26, 2007.
  5. ^ "Kerrang!". April 5, 2018.
  6. ^ Robinson, Georgina (June 10, 2014). "Cystic fibrosis no barrier for Nathan Charles as he prepares for Test debut". Rugby Heaven. Retrieved June 10, 2014.
  7. ^ "Home is where the heart'll stay: Sci-Tech: News: News24". Archived from the original on July 30, 2008. Retrieved July 31, 2008. Home is where the heart'll stay
  8. ^ "Harry Coffey – Jockey Profile". Racing.com. October 2016. Retrieved October 31, 2016.
  9. ^ "CricInfo: Chris Davies". ESPNcricinfo. August 2001. Retrieved January 26, 2007.
  10. ^ "Jak dziś żyje AniKa Dąbrowska? Zwyciężczyni Voice Kids właśnie świętuje 18. urodziny!".
  11. ^ Deford, Frank (1997). Alex: The Life of a Child. Rutledge Hill Press. ISBN 1558535527.
  12. ^ "Boomer Esiason: His fight against his son's illness". USA Weekend Magazine. October 11, 1998. Retrieved January 26, 2007. [dead link]
  13. ^ Holden, Stephen (April 3, 1997). "An artist whose medium was pain". The New York Times. Retrieved February 23, 2007.
  14. ^ Travis Flores
  15. ^ Webster, Philip; Coates, Sam (November 29, 2006). "Gordon Brown's baby son diagnosed with cystic fibrosis". The Times. London. Retrieved January 26, 2007.
  16. ^ "AC Player Battles Disease To Play Basketball". Anderson University. January 28, 2005. Archived from the original on September 28, 2007. Retrieved July 18, 2007.
  17. ^ "Taoiseach praises 'remarkable people' at award ceremony". The Irish Times. November 10, 1998. Retrieved December 5, 2016.
  18. ^ Rubinkam, Michael (April 25, 2008). "Howard Stern regular Kenneth Kallenbach dead at 39". Pittsburgh Tribune-Review. Archived from the original on July 13, 2009. Retrieved April 25, 2008.
  19. ^ "JustGregory.net: Fanzone: Biographie". Just-Gregory.com. Retrieved January 26, 2007.
  20. ^ "Time for the fourth season of Everything for Sweden". SVT Official Website. Sveriges Television. May 26, 2014. Retrieved December 31, 2014.
  21. ^ Nillson, Christoffer (December 8, 2014). ""Allt för Sverige"-Katie om nyckeln till sjukdomsgåtan ("All for Sweden" Katie- the key to a puzzling disease)". Aftonbladet. Retrieved December 31, 2014.
  22. ^ "Operabase professional artist database (Katie Malik)". Operabase.com. Retrieved December 31, 2014.
  23. ^ Park, Madison (April 27, 2010). "Death at 25: Blogging the end of a life". CNN. Retrieved April 27, 2010.
  24. ^ Barrow, Becky (July 3, 2003). "Pop singer dies after valiant battle with cystic fibrosis". The Daily Telegraph. London. Archived from the original on June 23, 2003. Retrieved February 23, 2007.
  25. ^ "Pa. girl who took on donor rules gets adult lungs". New York Post. June 12, 2013.
  26. ^ "Christine Nelson - Biography - IMDb". IMDb.
  27. ^ http://www.tv.com/people/christine-nelson-ii/[dead link]
  28. ^ "Retro Singer | UK | Bianca Nicholas".
  29. ^ Rothenberg, Laura (June 9, 2003). Breathing for a living. Hyperion. ISBN 1-4013-0059-6.
  30. ^ "Online World of Wrestling: Wrestler Profile: Andrew Simmons". onlineworldofwrestling.com. Retrieved February 1, 2007.
  31. ^ "A Boy Called Alex". Archived from the original on April 16, 2009. Retrieved December 23, 2011.
  32. ^ "Orla Tinsley: Honesty about death and purpose in life · TheJournal.ie". September 23, 2012.
  33. ^ Wallace, Catherine M. (Summer 1999). "Naked Before God: The Return of a Broken Disciple". Anglican Theological Review. Archived from the original on October 16, 2007. Retrieved February 23, 2007.
  34. ^ "Actor Anton Yelchin, killed in an accident as he was about to talk publicly about his cystic fibrosis, celebrated in intimate Sundance documentary".

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List of people diagnosed with cystic fibrosis

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hispanic populations with cystic fibrosis are often not successfully diagnosed. This is in part due to the minimal dissemination of existing data on patients...

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Idiopathic pulmonary fibrosis

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Idiopathic pulmonary fibrosis (IPF), or (formerly) fibrosing alveolitis, is a rare, progressive illness of the respiratory system, characterized by the...

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Frankie Abernathy

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Abernathy had cystic fibrosis, which she was diagnosed with at the age of three. During her time on The Real World, she showed many symptoms of the genetic...

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Vertex Pharmaceuticals

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cause of cystic fibrosis rather than the symptoms, in patients 6 years or older who have the G551D gene mutation. In the US, 30,000 people have cystic fibrosis...

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Jerry Nelson

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com. Archived from the original on 29 March 2010. "List of people diagnosed with cystic fibrosis". enotes.com. Retrieved 25 August 2012. "Muppet puppeteer...

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Laura Rothenberg

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Shortly after birth she was diagnosed with cystic fibrosis, a fatal disease with varying life expectancy. Goddaughter of Debra Winger, Rothenberg attended...

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Colton Underwood

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raise money for cystic fibrosis research and medical equipment. Underwood started the foundation after his cousin Harper was diagnosed with the disease....

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Mallory Smith

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author and cystic fibrosis advocate. Smith was born to Mark Smith and Diane Shader Smith on October 12, 1992, and diagnosed with cystic fibrosis, a "progressive...

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Thalassemia

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Cochrane Cystic Fibrosis and Genetic Disorders Group (ed.). "Calcium channel blockers for preventing cardiomyopathy due to iron overload in people with transfusion-dependent...

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Cirrhosis

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caused by the formation of scar tissue known as fibrosis due to damage caused by liver disease. Damage to the liver leads to repair of liver tissue and subsequent...

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Arylsulfatase B

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regulator (CFTR), the membrane channel deficient in cystic fibrosis. Measurements in cystic fibrosis cell line IB3 and its derivative cell line C38, which...

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Tobramycin

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treatment of exacerbations of chronic infection with Pseudomonas aeruginosa in people diagnosed with cystic fibrosis. Tobramycin eye drops (with or without...

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Fibrocystic breast changes

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ruling out breast cancer. Fibrocystic changes include fibroadenomas, fibrosis,papillomas of the breast, and apocrine-type metaplasia. Management may involve...

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Testicular atrophy

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that cystic fibrosis affects multiple systems in the human body, including the reproductive system. Around 97-98% of people with cystic fibrosis who have...

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Primary ciliary dyskinesia

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those with cystic fibrosis. While previously it was thought that with early diagnosis, lung function could largely be prevented in children with PCD, it...

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Spirometry

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conditions such as asthma, pulmonary fibrosis, cystic fibrosis, and COPD. It is also helpful as part of a system of health surveillance, in which breathing...

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Lung transplantation

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transplant for cystic fibrosis by Joel Cooper (Toronto). In 1988, Vera Dwyer, a woman from County Sligo in Ireland, was diagnosed with an irreversible...

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Fight Forever Foundation

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foundation founded to find a cure for cystic fibrosis (CF), a life-threatening, genetic lung disease affecting 100,000 people worldwide. This objective is expressed...

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Bronchitis

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ed. Mosby (Elsevier). Chapter 33: Bronchitis, Bronchiectasis, and Cystic Fibrosis. ISBN 978-0323025737. Foster, W (2002). "Mucociliary transport and...

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Sialadenitis

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evident with cystic dilation of the salivary ducts and periductal fibrosis. Mucus extravasation may also be observed. Common observations of chronic sialadenitis...

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Asbestosis

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presence of asbestos bodies in association with pulmonary fibrosis establishes the diagnosis. Conversely, interstitial pulmonary fibrosis in the absence of asbestos...

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