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List of cystic fibrosis organizations information


The following organizations assist people with or conduct research on cystic fibrosis, a hereditary disease that affects the lungs and digestive system, causing progressive disability and often premature death.

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List of cystic fibrosis organizations

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Association of cystic fibrosis patients organization to support people and family with cystic fibrosis. Attain Health Foundation, an organization that helps...

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Cystic Fibrosis Foundation

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Cystic Fibrosis Foundation (CFF) is a 501(c)(3) non-profit organization in the United States established to provide the means to cure cystic fibrosis...

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Cystic Fibrosis Trust

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The Cystic Fibrosis Trust (stylised as Cystic Fibrosis) is a UK-based national charity founded in 1964, dealing with all aspects of cystic fibrosis (CF)...

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Cystic fibrosis

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as 1595. The name "cystic fibrosis" refers to the characteristic fibrosis and cysts that form within the pancreas. Cystic fibrosis typically manifests...

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Cystic Fibrosis Canada

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Cystic Fibrosis Canada is one of national charitable but not-for-profit corporation established in 1960. Cystic Fibrosis Canada's mandate is to help individuals...

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Cystic fibrosis transmembrane conductance regulator

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Cystic fibrosis transmembrane conductance regulator (CFTR) is a membrane protein and anion channel in vertebrates that is encoded by the CFTR gene. Geneticist...

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Fight Forever Foundation

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Cystic Fibrosis List of cystic fibrosis organizations Canadian Cystic Fibrosis Foundation LFHS graduate Ferrone gives all to find cystic fibrosis cure...

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Claire Wineland

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Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). She died from...

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Azithromycin

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for cystic fibrosis". Eur Respir J. 24 (5): 834–8. doi:10.1183/09031936.04.00084304. PMID 15516680. S2CID 17778741. "Azithromycin and cystic fibrosis"....

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Cirrhosis

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caused by the formation of scar tissue known as fibrosis due to damage caused by liver disease. Damage to the liver leads to repair of liver tissue and subsequent...

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Pseudomonas aeruginosa

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often occurs during existing diseases or conditions – most notably cystic fibrosis and traumatic burns. It generally affects the immunocompromised but...

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Jeffrey Leiden

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known as VX-880. Criticism of Vertex pricing structures for Orkambi, a groundbreaking cystic fibrosis drug costing in the region of US$135,000 to US$270,000...

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Pneumoconiosis

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class of interstitial lung disease where inhalation of dust (for example, ash dust, lead particles, pollen grains etc) has caused interstitial fibrosis. The...

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Joshua Boger

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inhibitor for treatment of hepatitis C; and Kalydeco, for the treatment of cystic fibrosis. In 2003, Vertex was listed as one of forty worldwide Technology...

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Orphan drug

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treatment for cystic fibrosis patients by significantly improving their quality of life and extending their life expectancies. Now, cystic fibrosis patients...

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The Alfred Hospital

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consortium of medical research institutions located onsite. Some of the specialty units within The Alfred Hospital include: Adult Cystic Fibrosis Unit Allergy...

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Colistin

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is used to attack P. aeruginosa biofilm infection in lungs of patients with cystic fibrosis. Biofilms have a low-oxygen environment below the surface where...

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Arylsulfatase B

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regulator (CFTR), the membrane channel deficient in cystic fibrosis. Measurements in cystic fibrosis cell line IB3 and its derivative cell line C38, which...

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Aztreonam

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(aztreonam/avibactam). Nebulized forms of aztreonam are used to treat infections that are complications of cystic fibrosis and are approved for such use in...

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Tobramycin

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indicated in the treatment of exacerbations of chronic infection with Pseudomonas aeruginosa in people diagnosed with cystic fibrosis. Tobramycin eye drops...

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Eddie Andelman

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the Dominican Republic. Jimmy Fund Man of the Year Joey Fund/Cystic Fibrosis Man of the Year Big Brothers Man of the Year Andelman worked at WEEI for ten...

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