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Leprosy stigma information


Leprosy stigma is a type of social stigma, a strong negative feeling towards a person with leprosy relating to their moral status in society.[1] It is also referred to as leprosy-related stigma, leprostigma, and stigma of leprosy.[2] Since ancient times, leprosy instilled the practice of fear and avoidance in many societies because of the associated physical disfigurement and lack of understanding behind its cause. Because of the historical trauma the word "leprosy" invokes, the disease is now referred to as Hansen's disease, named after Gerhard Armauer Hansen who discovered Mycobacterium leprae, the bacterial agent that causes Hansen's disease.[3] Those who have suffered from Hansen's disease describe the impact of social stigma as far worse than the physical manifestations despite it being only mildly contagious and pharmacologically curable.[4][5] This sentiment is echoed by Weis and Ramakrishna, who noted that "the impact of the meaning of the disease may be a greater source of suffering than symptoms of the disease".[5]

  1. ^ Goffman, Erving (1986). Stigma: Notes on Management of Spoiled Identity. New York, NY: Simon & Schuster Inc. pp. 1–3. ISBN 9780671622442.
  2. ^ "Stigma of Leprosy" (PDF).
  3. ^ White, Cassandra (2017). "Clinical and Social Aspects of Leprosy (Hansen's Disease) and Contemporary Challenges to Elimination" (PDF). Journal of Dermatology and Clinical Research. 5: 1097. S2CID 42414763. Archived from the original (PDF) on 2018-11-04.
  4. ^ Nancy, Waxler (1981). Learning to be a leper: a case study in the social construction of illness. Cambridge: Cambridge University Press.
  5. ^ a b "Weis, M. and Ramakhrishna, J. "Stigma interventions and research for international health". 2001". Archived from the original on 2013-03-18. Retrieved 2017-08-28.

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