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Muscular Dystrophy Association information


Muscular Dystrophy Association
AbbreviationMDA
FormationJune 1950; 74 years ago (1950-06)
FounderPaul Cohen
Founded atNew York City, U.S.
Typenon-profit
Tax ID no.
13-1665552
Focuspatient services, disease research, care and advocacy
Location
  • Chicago, Illinois, U.S.
Region
United States
Key people
  • Donald S. Wood (CEO)[1]
  • Former Governor Brad Henry (Chairman)[2]
  • Sharon Hesterlee, Ph.D. (Chief Research Officer)[3]
Revenue
$63.7 million (in 2020)[4]
Websitewww.mda.org

Muscular Dystrophy Association (MDA) is an American nonprofit organization dedicated to supporting people living with muscular dystrophy, ALS, and related neuromuscular diseases. Founded in 1950 by Paul Cohen, who lived with muscular dystrophy, MDA accelerates research, advances care, and works to empower families to live longer and more independent lives.[5][6] Renowned for The MDA Labor Day Telethon, the annual telecast aired live every Labor Day weekend from 1966 to 2010, hosted by Jerry Lewis, who also served as MDA's national chairman. Also, Don Rickles, Frank Sinatra, Sammy Davis, Jr., Milton Berle, Wayne Newton, Norm Crosby, Don Francisco, Tony Orlando, Johnny Carson, Aretha Franklin, Maureen McGovern, Diana Ross, Angela Lansbury and others have supported MDA over the years.[7] The organization's headquarters is in Chicago, Illinois.[8]

  1. ^ Miller, Hawken (17 November 2020). "Q&A: Meet Donald Wood, the Muscular Dystrophy Association's New CEO and President". Muscular Dystrophy News. Retrieved 19 April 2021.
  2. ^ "Muscular Dystrophy Association Elects Governor Brad Henry as Chairman and Christopher Rosa, Ph.D. as Vice Chairman of the Board of Directors". GlobeNewswire. Retrieved 2023-08-18.
  3. ^ "New MDA Program for Gene Therapy Development in Ultra-Rare Diseases: Sharon Hesterlee, PhD". Neurology Live. Retrieved 2023-08-18.
  4. ^ "Muscular Dystrophy Association". ProPublica. Retrieved 2023-08-18.
  5. ^ "VIDEO: Frank Sinatra Backstage at the Jerry Lewis Telethon Circa 1970s". Reel Life With Jane. Retrieved 2023-08-18.
  6. ^ "Lou Gehrig Day". MLB.com. Retrieved 2023-08-18.
  7. ^ "History". Muscular Dystrophy Association. 29 December 2015.
  8. ^ "MDA to Move HQ to Chicago". Globest.com. Retrieved 2023-08-18.

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Muscular Dystrophy Association

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Muscular dystrophy

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Muscular dystrophies (MD) are a genetically and clinically heterogeneous group of rare neuromuscular diseases that cause progressive weakness and breakdown...

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Duchenne muscular dystrophy

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Myotonic dystrophy (DM) is a type of muscular dystrophy, a group of genetic disorders that cause progressive muscle loss and weakness. In DM, muscles are...

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Muscular Dystrophy Canada

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find a cure for neuromuscular disorders. Founded in 1954 as Muscular Dystrophy Association of Canada, volunteers and staff nationwide have helped to provide...

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Service Merchandise

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Merchandise was one of the largest corporate donors to the Muscular Dystrophy Association during its time as an established company. Chairman/CEO Raymond...

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The Jerry Lewis MDA Labor Day Telethon

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the United States to raise money for the Muscular Dystrophy Association (MDA). The Muscular Dystrophy Association was founded in 1950 with hopes of gaining...

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International Association of Fire Fighters

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on the wall. The IAFF is the largest national sponsor of the Muscular Dystrophy Association (MDA). Members raise funds primarily through the "Fill the Boot"...

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Kevin Hart

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held without a host. On September 9, 2020, executives from the Muscular Dystrophy Association announced plans to relaunch their annual MDA telethon, move...

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Booboo Stewart

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organizations. In 2010, he was named a Celebrity Ambassador by the Muscular Dystrophy Association. In his role, Stewart is helping raise awareness in the fight...

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Jerry Lewis

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continued to appear annually on his telethons on behalf of the Muscular Dystrophy Association. One of the most memorable was the 1976 telethon, broadcast...

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Lou Ferrigno

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on the program in order to raise money for his charity, the Muscular Dystrophy Association. Ferrigno was Team Unanimous' project manager for the task depicted...

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Alison Sweeney

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Machine, Muscular Dystrophy Association, August 15, 2008, Retrieved February 4, 2010 "MDA Telethon" Archived 2010-02-09 at the Wayback Machine, Muscular Dystrophy...

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Rhys Hoskins

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of the groomsmen. The couple raised over $1 million for the Muscular Dystrophy Association while he played in Philadelphia. "Rhys Hoskins Stats, Fantasy...

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List of disability organisations in Singapore

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Care Service Swords & Stationery Muscular Dystrophy Association Motor Neurone Disease Association Singapore Association for the Deaf Singapore School for...

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Jann Carl

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Missouri School of Journalism. Carl has been associated with Muscular Dystrophy Association for more than 25 years. After co-hosting the MDA Labor Day Telethon...

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Eleanor Gehrig

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Gehrig served as National Campaign Chair on the board of the Muscular Dystrophy Association. Gehrig petitioned Congress to provide funding for research...

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ALS

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ALS Association. Archived from the original on 21 December 2018. Retrieved 23 December 2018. "ALS: Amyotrophic Lateral Sclerosis". Muscular Dystrophy Association...

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Help Cure Muscular Dystrophy

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Cure Muscular Dystrophy is a volunteer computing project that runs on the BOINC platform. It is a joint effort of the French muscular dystrophy charity...

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Nemaline myopathy

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myopathy is one of the neuromuscular diseases covered by the Muscular Dystrophy Association in the United States. Signs vary from person to person. Young...

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List of genetic disorders

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Types of Distal MD". Muscular Dystrophy Association. 2015-12-18. Retrieved 2019-04-16. "OMIM Entry - # 310200 - MUSCULAR DYSTROPHY, DUCHENNE TYPE; DMD"...

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Spinal muscular atrophy

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who first documented the late-onset form and distinguished it from muscular dystrophy. Very rarely used Dubowitz disease (not to be confused with Dubowitz...

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Developmental Studies Hybridoma Bank

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variety of individuals and institutions, the latter including the Muscular Dystrophy Association, the National Cancer Institute, the NIH Common Fund, and the...

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National Association of Letter Carriers

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USPS employees. The union has a close relationship with the Muscular Dystrophy Association. The NALC was the first national sponsor of MDA and letter carriers...

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Poster child

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employed by the Muscular Dystrophy Association (see e.g. Obituary of Jolene Kay Worley, who in 1955 became the first National Muscular Dystrophy Poster Child...

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Joan Crawford

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