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For many elderly carers of a relative who has a learning or other disability, future planning is an issue. The population of older parents who have children with a learning disability is growing and many of their children are likely to outlive them.[1] In many cases the caring role can span up to seven decades, ending only with their death.[2][3] Governments and other service providers cannot ignore the pressing needs of this population and their parent and sibling carers.[4] In most countries, family carers provide inexpensive care for a person with a learning disability and other disabilities.[5] This trend is set to continue in England.[6] Demographic changes and the health needs of these two growing populations must be considered against government policy constraints and limited in-home and external care options in order to avoid a crisis.[7] The consequences of not supporting these family carers will lead to crisis management, increase in distress and care giving burdens, and increased spending on unsuitable crisis placements.[8] Housing and financial guidance are issues for caregivers.[8]
^Mencap. "The Housing Timebomb".
^Braddock D, Emerson E, Felce D, Stancliffe RJ (2001). "Living circumstances of children and adults with mental retardation or developmental disabilities in the United States, Canada, England and Wales, and Australia". Mental Retardation and Developmental Disabilities Research Reviews. 7 (2). Mental Retardation and developmental Disabilities Research Reviews 7(2): 115–121. doi:10.1002/mrdd.1016. PMID 11389566.
^Bigby, C (2004). Ageing with a lifelong disability. A guide to practice, program and policy issues for human service professionals.
^Heller T, Caldwell J, Factor A (2007). "Aging family caregivers: Policies and practices". Mental Retardation and Developmental Disabilities Research Reviews. 13 (2): 136–142. doi:10.1002/mrdd.20138. PMID 17563896.
^Hogg J; Lucchino R; Wang K; Janicki MP; Working Group (2000). Healthy ageing: Adults with intellectual disability: ageing and social policy. World Health Organisation.
^Emerson E, Hatton C, Robertson J, et al. (2012). People with learning disabilities in England. Lancaster: improving health and lives. Learning disability observatory.
^Barron S, McConkey R, Mulvany F (2006). "Family carers of adult persons with intellectual disabilities on the island of Ireland". Journal of Policy and Practice in Intellectual Disabilities. 3 (2): 87–94. doi:10.1111/j.1741-1130.2006.00059.x.
^ abTaggart L, Truesdale-Kennedy M, Ryan A, McConkey R (2012). "Examining the support needs of ageing family carers in developing future plans for a relative with an intellectual disability". Journal of Intellectual Disabilities. 16 (3): 217–34. doi:10.1177/1744629512456465. PMID 22890999. S2CID 25624231.
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