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Dynamic consent is an approach to informed consent that enables on-going engagement and communication between individuals and the users and custodians of their data. It is designed to address the many issues that are raised by the use of digital technologies in research and clinical care that enable the wide-scale use, linkage, analysis and integration of diverse datasets and the use of AI and big data analyses. These issues include how to obtain informed consent in a rapidly-changing environment; growing expectations that people should know how their data is being used; increased legal and regulatory requirements for the management of secondary use of data in biobanks and other medical research infrastructure. The approach started to be implemented in 2007 by an Italian group [1] who introduced the ways to have an ongoing process of interaction between researcher and participant where "technology now allows the establishment of dynamic participant–researcher partnerships." The use of digital interfaces in this way was first described as 'Dynamic Consent' in the EnCoRe project (see below). Dynamic Consent therefore describes a personalised, digital interface that enables two-way communication between participants and researchers [2] and is a practical example of how software can be developed to give research participants greater understanding and control over how their data is used.[3] It also enables clinical trial managers, researchers and clinicians to know what type of consent is attached to the use of data they hold and to have an easy way to seek a new consent if the use of the data changes. It is able to support greater accountability and transparency, streamlining consent processes to enable compliance with regulatory requirements.
^Mascalzoni, D; Hicks, Andrew; Pramstaller, P; Wjst, M (2007). "Informed consent in the genomics era". PLOS Med. 5 (9): 141–6. doi:10.1371/journal.pmed.0050192. PMC 2535658. PMID 18798689.
^Kaye, J; Whitley, EA; Lund, D; Morrison, M; Teare, H; Melham, K (2015). "Dynamic consent: a patient interface for twenty-first century research networks". Eur. J. Hum. Genet. 23 (2): 141–6. doi:10.1038/ejhg.2014.71. PMC 4130658. PMID 24801761.
^Wee, Richman; Henaghan, Mark; Winship, Ingrid (December 2013). "Dynamic consent in the digital age of biology: online initiatives and regulatory considerations". Journal of Primary Health Care. 5 (4): 341–347. doi:10.1071/HC13341. PMID 24294625.
Dynamicconsent is an approach to informed consent that enables on-going engagement and communication between individuals and the users and custodians...
accessible information, consent can be completed remotely, and the process can become paperless. One form of digital consent is dynamicconsent, which invites...
control can be the root cause for privacy issues. Informed consent mechanisms including dynamicconsent are important in communicating to data subjects the different...
reports, including medical images, if that option is chosen in the dynamicconsent module. By that means, GMDB complements medRxiv and can also be used...
their access by any provider (like online advertisers). Consent management supports the dynamic creation, management and enforcement of consumer, organizational...
sexual nature, centered around the creation of an unbalanced power dynamic. Consent is considered of the utmost importance within a BDSM relationship.[page needed]...
purposes may not suffice ethical and legal requirements. Dynamicconsent is an approach to consent that may be better suited to biobanking, because it enables...
that baby boomers are less willing to share data than millennials. Dynamicconsent Kitchin, Rob (August 18, 2014). The Data Revolution: Big Data, Open...
producer and fellow cast member Kevin Costner "praise[d]" Patton as "very dynamic in his own way, formidable and detailed", adding that he was "a fantastic...
safe environments and productive organizations. It draws on the use of consent, rather than majority voting, in discussion and decision-making by people...
dogma. As a guru, he advocated meditation and taught a unique form called dynamic meditation. Rejecting traditional ascetic practices, he advocated that...
Dynamic currency conversion (DCC) or cardholder preferred currency (CPC) is a process whereby the amount of a credit card transaction is converted at...
file system. In contrast, a dynamic web page is generated by a web application, usually driven by server-side software. Dynamic web pages are used when each...
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use the word "homosexual" in the narrative. United Kingdom 1962 Advise & Consent Senator Brigham "Brig" Anderson Don Murray Anderson is a Senator in Utah...
animal abuse, shock videos, content uploaded without the copyright holder's consent, hate speech, spam, and predatory behavior. YouTube relies on its users...
incomparably the greatest figure after Gandhi in our history - a man of dynamic force, intellectual power and profound vision. Lok Rajya. Directorate-General...
areas were grossly over-represented. The legislation also required the consent of the Bundesrat, the federal council of deputies from the 27 states. Executive...
relationships with more than one partner at the same time, with the informed consent of all partners involved. Some people who identify as polyamorous believe...
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results in data values that exceed the dynamic range of the processing electronics. CT data sets have a very high dynamic range which must be reduced for display...
Taguig as its home venue for this season. The Dynamic Herb Sports Complex is the home venue of Dynamic Herb Cebu. The Campo Alcantara Stadium is the home...
Victoria was invited to open the new Manchester Town Hall, and she allegedly consented on the condition that the statue be removed. The statue remained, Victoria...
the game is based on her likeness and story and was depicted without her consent. Rockstar filed to dismiss Gravano's lawsuit in April, and stated that...
a 25-year impost—which Hamilton voted against—that again required the consent of all the states; it also approved a commutation of the officers' pensions...
consultation, research, or professional experience. Consent plays a large role in Forensic Psychology. Informed consent is required for psychologists, and when services...
the Swiss public authorities may enter the premises without the express consent of the bank. The bank exercises supervision and police power over its premises...
of Sex, with Ice claiming that he was included in the book without his consent. Madonna continued her provocative imagery in the 1993 erotic thriller...
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