Brain Tumor Social Media (#BTSM) is a patient and care partner-run, grassroots Twitter community. The Twitter account @BTSMchat hosts bi-monthly tweet chats (up to 2023 monthly) for the #BTSM community (the Twitter equivalent of a cancer support group) and consistently trends among the top 15 of disease-related tweet chats.[1] A study published in 2020 revealed the hashtag was most commonly used by brain tumor patients (33.13%), along with patient advocacy organizations (7.01%), care partners (4.63%), and clinicians (3.63%) and researchers (3.37%) specializing in brain tumors and brain cancers.[1]
The Brain Tumor Social Media hashtag—#BTSM—was introduced to the medical community in "Disease-Specific Hashtags for Online Communication About Cancer Care" published in JAMA Oncology,[2] and later covered as a case study in maintaining a successful online health-oriented community (published in JCO Clinical Cancer Informatics).[3] Guidelines for neuro-oncology professionals interacting with patients on social media were introduced in the journal Neuro-Oncology.[4]
The #BTSM hashtag represents benign and malignant brain tumors. In a 2016 interview for CURE magazine, #BTSM organizer @TheLizArmy said, “There are over 120 different brain tumors… I liked the idea of an inclusive group for everyone with brain tumors where we can all share our experiences.”[5]
^ abFeliciano, Josemari T.; Salmi, Liz; Blotner, Charlie; Hayden, Adam; Nduom, Edjah K.; Kwan, Bethany M.; Katz, Matthew S.; Claus, Elizabeth B. (2020). "Brain Tumor Discussions on Twitter (#BTSM): Social Network Analysis". Journal of Medical Internet Research. 22 (10): e22005. doi:10.2196/22005. PMC 7582142. PMID 33030435.
^Katz, Matthew S.; Utengen, Audun; Anderson, Patricia F.; Thompson, Michael A.; Attai, Deanna J.; Johnston, Claire; Dizon, Don S. (2016-03-01). "Disease-Specific Hashtags for Online Communication About Cancer Care". JAMA Oncology. 2 (3): 392–394. doi:10.1001/jamaoncol.2015.3960. ISSN 2374-2437. PMID 26539640.
^Katz, Matthew S.; Anderson, Patricia F.; Thompson, Michael A.; Salmi, Liz; Freeman-Daily, Janet; Utengen, Audun; Dizon, Don S.; Blotner, Charlie; Cooke, David T.; Sparacio, Dee; Staley, Alicia C. (2019-06-28). "Organizing Online Health Content: Developing Hashtag Collections for Healthier Internet-Based People and Communities". JCO Clinical Cancer Informatics. 3 (3): 1–10. doi:10.1200/CCI.18.00124. PMID 31251658. S2CID 195761456.
^Hamidi, Nima; Mansouri, Alireza (November 2019). "Epid-15. Guidelines for the Optimal Use of Social Media for Neuro-Oncologists". Neuro-Oncology. 21 (Supplement_6): vi77. doi:10.1093/neuonc/noz175.315. ISSN 1522-8517. PMC 6847921.
^"BTSM Provides a Sense of Community for Patients With Brain Tumors". Cure Today. Retrieved 2020-05-17.
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